From virtually the moment of my daughter's birth, I have be consciously focused to ensure her inclusion in all aspects of life. We do things and go places that a typical family does even when issues of accessibility make it a huge hassle. I have always wanted her to think that the whole world is hers. I have insisted (sometimes loudly) that she always be fully included at school. So, I should be celebrating success today; her backpack contained an invitation to a classmate's sleepover birthday party.
Yet, this has sparked a crisis. I don’t know the parents of the girl that invited my daughter. And while their daughter likely has some inkling of what having my child over means, they may not. Do I call them to explain? How many details do I ask (can a wheelchair get into your house? Are you comfortable with my daughter's needs?) Do I invite myself along? And what about all of her needs (medications, emergencies)? Do I only let her go for the evening and miss the sleeping part?
I am amazed at how a happy, exciting invitation can cause so many issues and concerns. After a few deep breaths, I decide to enjoy the occasion and let my daughter enjoy the invitation. Inclusion works; she is “one of the girls”. Tomorrow we will figure out all the details. We have done this many times over the years; because for inclusion to work, it often takes some work on our part.
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