Sunday, December 21, 2008

10 tips for good advocates

Pat Howey, an Indiana advocate and contributor to Wrightslaw, says parents need to understand that the law gives them power to use in educational decisions for their children. Parents should not be afraid to use their power.

But, there are better ways to obtain positive results than to roar through IEP meetings in a Mack Truck. Here are Pat's newest tips for effective, successful advocates.

1. Good advocates facilitate the IEP process.

Advocates must set an example for the entire IEP Team. They must be a role model of behavior for the parent. Challenging school experts, demeaning school staff, or being inconsiderate or impolite, will not advance a child’s cause. Your goal is to get better school services for a child. Good advocates ask questions and make valuable suggestions to advocate for a child. It is okay to disagree. It is not okay to put down or verbally attack someone.

2. Good advocates know the child and understand the disability.

Do your homework before you attempt to advocate for a child. Research the child’s disability. Be ready with ideas about instructional methods that are research-based and peer-reviewed. Meet the child and the family in the home environment. Put off making recommendations until you fully understand how the child’s disability affects his or her life and education.

3. Good advocates try to reduce existing barriers between the parent and the school.

Your goal is to bring the school and the parent closer to agreement. Good advocates explain to parents that negotiation is part of the IEP Team process – and a part of life! Pouring gasoline on a fire ensures that everyone gets burned and does not improve the child’s lot.

4. Good advocates are willing to admit mistakes and to apologize.

No one is perfect. We all make mistakes. Good advocates are not afraid to say they are sorry when they make a mistake. They may even write a note to everyone involved, apologizing and asking for forgiveness.

5. Good advocates hone their listening skills to a fine edge.

You must learn to listen to everything that others say. Sometimes, what others do not say is most important. If you are not listening, you may not hear what others say and what they do not say. Good advocates repeat and paraphrase what they have heard to avoid misunderstandings. They ask others to verify that they understood correctly. Good advocates ask follow-up questions. They do not interrupt even when they are faced with rudeness and discourtesy.

6. Good advocates learn the art of negotiation.

Remember the old saying, “You catch more flies with honey than you do with vinegar?” Learning to negotiate is not a sign of weakness or that the parent’s position is not valid. Negotiation is an art that good advocates polish to a fine finish. Successful negotiations allow everyone to come out of the IEP Team Meeting feeling like winners. Brice Palmer, noted advocate from Vermont, says it best: “Good advocates learn to develop a language of persuasion rather than a language of positional combat."

7. Good advocates understand special and general education law and the interrelationship between these and other laws.

The law is not a static entity. It changes every day through court decisions and other types of clarifications. Good advocates review special education law often. They know that answers to frequently asked special education questions may be found in other unrelated laws. For example, Department of Agriculture regulations address special dietary requirements for children. A State’s Department of Health regulations may address classroom size, lighting, and window light. General education law may provide insight into class size and case load issues. The U.S. Justice Department provides guidance on bullying and harassment. Good advocates understand that school policies often omit the special needs of students with disabilities. School emergency plans may not address the needs of children in wheelchairs or children who are deaf or blind. Good advocates learn to research many different laws.

8. Good advocates know that understanding the law is different from quoting the law.

Good advocates know the law but they understand that it is often ineffective and counterproductive to quote it. Pete Wright once said, “[A] parent should never quote law, even if they are an atty, it simply polarizes relationships, instead seek "help" in better understanding something best left to rocket scientists and lawyers. -- Pete Wright Deltaville, VA USA - Tuesday, March 02, 1999 at 20:55:35 (EST).

9. Good advocates understand the importance of ethical behavior in their practice.

There is no Code of Ethics or Professional Responsibility for special education advocates. Advocates have nothing to look to for guidance and there is no governing body to oversee their practice. There are no penalties for advocates who act unprofessionally or unethically. This does not suggest that advocates should disregard ethics and engage in irresponsible behavior. Good advocates understand that the professional respect of the IEP Team is a key to successfully assisting parents achieve an appropriate education for their child.

10. Good advocates treat others the way they would like to be treated.

No one likes surprises. Members of IEP Teams do not respect or trust advocates who drop bombshells. Taking the team by surprise is likely to backfire, especially if the team “captain” is a gatekeeper or is determined to be the one who runs the show. Making the IEP Team Meeting a war of wits does not benefit the child nor does it facilitate the process for the parents.

Thursday, December 18, 2008

Buying Toys this Holiday Season for Children with Disabilities

The National Lekotek Center, the country's preeminent source for information about adaptive toys and play, is dedicated to making play and learning accessible for children with disabilities. Last year, Lekotek developed the AblePlay toy rating system and website that provides comprehensive information on toys for children with special needs so parents, special educators, therapists and others can make the best choices for the children in their lives with disabilities.

Choosing toys for children with disabilities can be difficult. AblePlay's independent toy reviews and detailed information help you get "beyond the box" to understand each toy's unique features, creative ways each toy can be used with children with special needs and skills that will be enhanced as a result. Search for an AblePlay-Rated Toy today and unlock the magic of play for your child with special needs.

The National Lekotek Center recommends the following Top Ten Things to Consider When Buying Toys for Children with Disabilities:

  1. Multisensory appeal: Does the toy respond with lights, sounds, or movement? Are there contrasting colors? Does it have a scent? Is there texture?
  2. Method of activation: Will the toy provide a challenge without frustration? What is the force required to activate? What are the number and complexity of steps required to activate?
  3. Where will the toy be used: Can the toy be used in a variety of positions such as side-lying or on wheelchair tray? Will the toy be easy to store? Is there space in the home?
  4. Opportunities for success: Can play be open-ended with no definite right or wrong way? Is it adaptable to the child's individual style, ability and pace?
  5. Current popularity: Is it a toy almost any child would like? Does it tie-in with other activities like T.V., movies, books, clothing, etc?
  6. Self-expression: Does the toy allow for creativity, uniqueness, and choice-making? Will it give the child experience with a variety of media?
  7. Adjustability: Does it have adjustable height, sound volume, speed, level of difficulty?
  8. Child's individual characteristics: Does the toy provide activities that reflect both developmental and chronological ages? Does it reflect the child's interests and age?
  9. Safety and durability: Consider the child's size and strength in relation to the toy's durability. Are the toy and its parts sized appropriately? Does the toy have moisture resistance? Can it be washed and cleaned?
  10. Potential for interaction: Will the child be an active participant during use? Will the toy encourage social engagement with others?

For additional information on toys, play and technology for children with disabilities, please call the Lekotek Toy Resource Helpline at 1-800-366-PLAY, or visit the Lekotek Web site.

Additional resources for finding adaptive toys:

Toys "R" Us 2008 Guide for Differently-Abled Kids
http://www.toysrus.com/shop/index.jsp?categoryId=3261680

Infinitec Toy Guide
http://www.infinitec.org/live/shopping/ShoppingGeneric.html

Alliance for Technology Access
http://www.ataccess.org/resources/wcp/endefault.html

Toy Directory.com
http://www.toydirectory.com/specialneeds.htm

Wednesday, December 17, 2008

What is the Family Involvement Fund?

I have found that being a parent of a child with a disability means I'm constantly learning. I'm learning how to follow through on therapies, how to advocate for my child, how to balance my different roles, etc. Sometimes that's informal learning, sometimes it's more formal. If you'd like to attend trainings, conferences, etc but need financial help to do so, you need to learn about the Family Involvement Fund. Here is a brief description, with a link to more info and the application:

What is the Family Involvement Fund?
The Family Involvement Fund (FIF) is a reimbursement fund that supports family members of children with disabilities to learn more about their child’s disability and the systems that provide services.


Families may choose to attend conferences, conventions, workshops, public forums or hearings, task force meetings, or other similar activities. Families may also choose to access training and information through online workshops, teleconferences, or webcasts.


In addition, the FIF provides reimbursement for approved purchase of print materials (books, manuals), or other media such as CDs/DVDs, and videos.


Separate funding is also available within the FIF for parents who are asked to participate officially as members on their Local Planning and Coordinating Council (LPCC), its committees, and sponsored activities.


How much is Available from the Family Involvement Fund?
The Family Involvement Fund will reimburse approved applicants up to $250 (for an individual) or $500 (for a family) for the grant year. Awards are per individual or family, not per child. Amounts are subject to change.


What the Family Involvement Fund Does Not Cover
The FIF does not reimburse for therapies or other developmental services, training for specific therapy modalities or academic course work, the purchase of developmental toys, materials, equipment, etc. for specific use by a child or family, and will not reimburse enrolled providers for expenses related to attendance at a training required for credentialing purposes. This fund is not intended for professionals or non-family members to attend trainings on a family’s behalf.


Who Can Apply to the Family Involvement Fund?
The Family Involvement Fund is available to families of children with disabilities, ages birth –through 21 years of age. Family includes parents, siblings, grandparents, and other extended family members, foster parents, legal guardians, and educational surrogate parents.


How do I Apply for the Family Involvement Fund?

You may apply online or print an application from the Family-to-Family website at http://www.inf2f.org/. You may also call or email to request an application form. (See contact information below)


Indiana Institute on Disability & Community
Family Involvement Fund
Attn: Cathy Beard
2853 E. 10th Street
Bloomington, IN 47408
1-800-825-4733/812-855-6508
TT: 812-855-9396
Fax: 812-855-9630
Email: fif@indiana.edu
Web:
http://www.inf2f.org


Tuesday, December 16, 2008

Surviving the Holidays

The holidays are a fun and exciting time. But sometimes, holiday festivities and get-togethers can be a recipe for disaster for a child with special needs. Extra lights, extra noise, extra people, extra food and an extreme deviation from your daily schedule can make the holidays miserable, rather than enjoyable, for your child. Throw in the stress you feel for your child and perhaps, all the opinions you receive about child-rearing and the holiday parties can turn miserable for you too. Here are a few simple tips to help your family survive this holiday season.

Have an escape plan
. Have a timetable in mind as to how long you plan to stay at a party. Know that you can stay longer if things are going well, but be ready to go at a moment’s notice when your child has had enough. If you are traveling and staying overnight, consider getting a hotel room rather than staying with family or friends. This provides your child a safe, quiet space to decompress after a party. If you’re hosting family for the holidays, make your child’s room is off limits to everyone except him/her and encourage your child to use it as a refuge to get away from everyone.

Opt out of the holiday clothing. If your child has sensitivities to certain clothing or textures or simply prefers to wear a favorite outfit, don’t fight the clothing battle. Even if you’re risking a disapproving comment or glance from a grandparent or friend, it’s more important that your child be comfortable and to start the day with as little stress as possible. Besides,
if a spill occurs, you’ll be the only parent at the table who isn’t worried about a possible stain!

Augment the menu.
Whether you’re taking a dish to share at someone else’s party or are hosting a group in your own home, take something you know your child will eat. The holidays don’t have to be about trying new foods or cleaning a plate. The holidays should be about giving thanks, even if your child is only giving thanks for chicken nuggets or macaroni
and cheese on that particular day!

Be the one who watches the kids.
By being the supervisory adult, you can keep a close eye on your little one. You can break up playmate squabbles and judge when your child might be reaching their stimulation limit. You can also avoid conversation with other adults if you’re receiving a judgmental eye or hearing a constant stream of child-rearing advice.

Bring supplies. Pack a bag or backpack full of familiar toys and activities your child enjoys. You don’t necessarily need to pull them out right away, but if needed you have them. If your child becomes over stimulated, finding a quiet corner with a familiar toy may be soothing.

Beware of bribes. Beware the big bribe for good behavior at a holiday party. It may only add to your child’s stress if they’re afraid of losing the incentive for bad behavior. Usually, small spontaneous rewards throughout the occasion are much more effective.

Prepare, prepare, prepare. Prepare your child for the event by explaining where you’re going, who will be there and what will happen while you’re there. Give as much detail as you think appropriate. Give them a strategy or two to help them if they begin to feel overwhelmed (i.e. finding that quiet corner with a book or toy). Try and think ahead,as much as possible, about any other hurdles that may cause a problem for your child.

You can’t plan for everything, but following these tips may help make the holidays go a little smoother for all, and keep that happy, loving holiday spirit going throughout the season.
(First Words 11/05)

Sunday, December 14, 2008

Spec Ed law that pertains to the transition at age 3

As I've mentioned before, you REALLY need to become familiar with the booklet of procedural safeguards the school gives you, and with Article 7. This post deals with the parts of the law that are specific to the transition from First Steps at age 3. There is certainly more for you to learn, but this will help give you an overview of the regulations that pertain to that case conference. The notes in italics have been added by me:

Article 7 Sections Related to Early Childhood Transition
New Article 7 was effective on August 13, 2008

511 IAC 7-36-5 Early childhood (page 40 of Article 7)

Authority: IC 20-19-2-8; IC 20-19-2-16

Affected: IC 20-19-2; IC 20-35

Sec. 5. (a) The length and frequency of the instructional day for early childhood students with disabilities, who are three (3) years of age through five (5) years of age, but not eligible for kindergarten, shall be based on the developmental and educational needs as determined by the student's CCC. A public agency may not unilaterally limit the length and frequency of the instructional day based on categories of:

(1) disability;

(2) age of students; or

(3) administrative convenience.

(b) The number of students assigned to an early childhood teacher is subject to the requirements of 511 IAC 7-32-13. (Indiana State Board of Education; 511 IAC 7-36-5)


This means that the previous guidelines that a "Full time student" would receive a minimum of 12.5 hours/wk is no longer part of the law. Parents will need to share the reasons their child needs a certain amount of programming in order to meet his unique needs and to ensure progress.

511 IAC 7-40-5 Conducting an initial educational evaluation (page 61 of Article 7)

(d) The initial educational evaluation must be conducted and the CCC convened within fifty (50) instructional days of the date the written parental consent is received by licensed personnel in accordance with section 4(h) of this rule. The time frame does not apply in the following situations:

(1) When a student has participated in a process that assesses the student's response to scientific, research based interventions described in section 2 of this rule, in which case the time frame is twenty (20) instructional days.

(2) When a child is transitioning from early intervention (Part C) to early childhood special education (Part B), in which case the evaluation must be completed and the CCC convened to ensure that the child receives special education services by his or her third birthday.

511 IAC 7-42-3 Case Conference Committee Participants (page 81 of Article 7)

(d) The public agency must invite the following individuals to participate in the CCC meeting in the following circumstances:

(1) In the case of a child who is transitioning from Part C of the Individuals with Disabilities Education Act as described in 511 IAC 7-43-2, an invitation to the initial CCC meeting must, at the request of the parent, be sent to the Part C service coordinator or other representatives of the Part C system to assist with the smooth transition of services.

511 IAC 7-42-6 Developing an individualized Education Program; components and parent copy

(c) The CCC must also consider the following factors when applicable:

(7) The IFSP for students who are transitioning from early intervention programs under Part C of the Individuals with Disabilities Education Act, 20 U.S.C. 1400 et seq.

511 IAC 7-43-2 Transition from early intervention services (Part C) to early childhood special education (Part B) (page 98 of Article 7)

Authority: IC 20-19-2-8; IC 20-19-2-16

Affected: IC 20-19-2; IC 20-35

Sec. 2. (a) The public agency's obligation to make a free appropriate public education available to a student with a disability begins on the student's third birthday.

(b) The public agency must do the following:

(1) Establish, maintain, and implement policies and procedures to assist the child participating in early intervention programs under Part C of the Individuals with Disabilities Education Act, 20 U.S.C. 1400 et s eq., who will be participating in early childhood special education experience a smooth and effective transition in a manner consistent with Part C of the Act.

(2) Participate in transition planning conferences convened by the Part C service coordinator, with the approval of the parent of the child. The transition planning conferences must be conducted in accordance with Part C of the Individuals with Disabilities Education Act.

(c) With parental consent, at least six (6) months prior to a student's third birthday, the state-operated or state supported program must transmit to the school corporation of legal settlement, the most recent:

(1) IFSP;

(2) family service plan report; and

(3) evaluation reports from any source.

(d) By the date of the third birthday of a student who may be eligible for early childhood special education, the public agency must do the following:

(1) Complete its evaluation.

(2) Convene a CCC to determine eligibility for special education and related services.

(3) If the student is eligible, develop an IEP for the student, taking into consideration the student's IFSP and the other general and special factors listed in 511 IAC 7-42-6(b) and 511 IAC 7-42-6(c).

(4) Implement the IEP.

(e) If a student's third birthday occurs during the summer and the CCC determines the student:

(1) requires extended school year services, the student's IEP must state that services will be initiated during the summer of the student's third birthday; or

(2) does not require extended school year services, the student's IEP shall state that services will be initiated at the beginning of the upcoming school year.

(Indiana State Board of Education; 511 IAC 7-43-2)


You can find a technical assistance document to help determine the need for extended school year services here. My child DID receive ESY when she was 3 b/c she had a May birthday and would not otherwise receive services in the summer. I felt that gap would result in regression of skills, so she had an ESY program. ESY is NOT just summer school, it is any type of support and/or service that extends beyond the normal school calendar.

Thursday, December 11, 2008

Meaningful Gift-Giving

Revolutionary Common Sense by Kathie Snow


Ahhh, the joy of sharing during wonderful gift-giving times: holidays, birthdays, and more! What’s on your shopping list? Toys, clothes, electronics, books, DVDs, or…? Your friends and loved ones will be happy with the gifts you give. Did you know you can give even more without spending a penny? Check out the following methods of meaningful gift-giving:


Parents: Give your child’s teacher Permission to Fail. Most educators try diligently to do their best. But teachers in inclusive classrooms may be unsure of themselves as they learn new strategies to include and support children with disabilities. In addition, they may often feel an extreme amount of pressure to do things perfectly. As the parent of a child with a disability, I learned many years ago that what worked with my son at one time, or in a particular environment, didn’t always work the way I thought it would at other times or in other environments. My husband and I frequently need to try new things at home, knowing we’ll make mistakes. We need to give educators (and anyone else who works with our children) the same Permission to Fail that we give ourselves. When parents let educators (and others) know it’s okay to make mistakes, so long as they’re willing to keep trying new things and do whatever it takes to be successful, educators can relax and do a better job. So with kind eyes, a warm smile, and a gentle touch on the hand or shoulder, say something like, “I’m not a perfect parent, and I don’t expect you to be a perfect teacher. It’s okay if you make mistakes. Let’s keep working together and help each other figure out the best ways to ensure both you and my child are successful and feel good about everything!”


Educators: Give mothers and fathers the gift of Respect for Parental Expertise. Parents of children with disabilities have years of experience—they are experts! Recognize that combining your professional expertise with parents’ intimate knowledge of their child will result in success for you and the student.


Parents and Educators: Give children with disabilities the gift of Responsibility. When we expect children to be responsible, they know we trust them and believe in them. Being responsible can take many forms, such as: doing chores at home, making their own decisions (small and large), actively participating in their IEP meetings (including writing goals), finding their own jobs, and…the list is endless! When we expect a child to be more responsible, we send the message that we believe she’s competent, and then she will believe she’s competent. This is a gift that can change a child’s life!


Parents: Give your child a Vacation to Kidland. The daily routines of too many children with disabilities are governed by disability-related services. Many don’t have time to be kids! So give your precious son or daughter a two week break (or more) from home visits, speech/physical/occupational therapies, and other special services. Let him choose what to do with the hours in Kidland: sleep, watch a video, play with friends, do nothing, or spend dynamite time with mom and dad. Grown-ups take two week vacations from work. Why shouldn’t kids get a vacation from the work of therapies and special services? Think how you and other family members will enjoy this vacation, too! (And, who knows, you may decide to extend the vacation indefinitely!)


Children and Adults with Disabilities: Give someone the gift of Friendship. Too many people with disabilities are seen primarily as recipients of help and assistance, and they’re surrounded by professionals and paid staff. But people with disabilities—just like people without disabilities—need friends and companions, and they need to be “givers,” not just “recipients.” Someone in your community needs your friendship and support! And the best way to “get a friend” is to “be a friend.” So make connections through church, community groups, or volunteer organizations, and find that person who needs you for a friend. When you give the gift of friendship, you give yourself a gift at the same time!


Moms and Dads of Children with Disabilities: Give yourself the gift of Serenity. Many parents are on the never-ending merry-go-round of services, IEPs, therapy goals, interventions, and more. When all this “disability business” is combined with being a wife/husband, having a job, and parenting all your children, disaster is in the making. Perpetual stress, exhaustion, and burn-out can create chaos in our lives, as well as in the lives of our loved ones. Everyone loses! Resolve to live a more peaceful, calm, serene life—be good to yourself and those you love. You don’t have to “do it all!” What can you stop doing? What can you let go of?


Parents around the country are discovering that cutting back on “disability business” has enabled them to rediscover a “normal” life. On a regular basis, ask yourself, “Will this [therapy, services, or whatever] really matter six months, one year, or five years from now?” We’re often so caught up in the daily grind that we fail to look at the long-term outcomes. Do whatever it takes to simplify your life so you can enjoy time for yourself, and with your precious children and sweetheart.


Make Simplicity part of your daily life, in all areas—not just disability issues. Clear out the clutter in your house, your car, your life. Say “no” more often, so you don’t overextend yourself or your children. Turn off the TV. Play a game with your family one night each week. Play some music and dance together. Cook together, then clean up the kitchen together. Read a book together. Cuddle in one bed together!


Give the gifts that truly matter—gifts from your heart and soul.

©2002-06 Kathie Snow, www.disabilityisnatural.com. Permission is granted for non-commercial use of this article: you may print this web page and photocopy it to share with others. Click here to download the PDF handout version of the article.

Wednesday, December 10, 2008

Benefits of inclusive schooling

For Children with Disabilities:
  • affords a sense of belonging to the diverse human family
  • provides a diverse stimulating environment in which to grow and learn
  • evolves in feelings of being a member of a diverse community
  • enables development of friendships
  • provides opportunities to develop neighborhood friends
  • enhances self-respect
  • provides affirmations of individuality
  • provides peer models
  • provides opportunities to be educated with same-age peers

For non-disabled classmates:
  • provides opportunities to experience diversity of society on a small scale in a classroom
  • develops an appreciation that everyone has unique and beautiful characteristics and abilities
  • develops respect for others with diverse characteristics
  • develops sensitivity toward others' limitations
  • develops feelings of empowerment and the ability to make a difference
  • increases abilities to help and teach all classmates
  • develops empathetic skills
  • provides opportunities to vicariously put their feet in another child's shoes
  • enhances appreciation for the diversity of the human family

For teachers:
  • helps teachers appreciate the diversity of the human family
  • helps teachers recognize that all students have strengths
  • creates an awareness of the importance of direct individualized instruction
  • increases ways of creatively addressing challenges
  • teaches collaborative problem solving skills
  • develops teamwork skills
  • acquires different ways of perceiving challenges as a result of being on a multi-disciplinary team
  • enhances accountability skills
  • combats monotony

For society:
  • promotes the civil rights of all individuals
  • supports the social value of equality
  • teaches socialization and collaborative skills
  • builds supportiveness and interdependence
  • maximizes social peace
  • provides children a miniature model of the democratic process
from "Creative Educators at Work: All Children Including Those with Disabilities Can Play Traditional Classroom Games," by Donna Raschke, Ph.D., and Jodi Bronson, Ed.S., 1999